I am still waiting to get things sorted out.  Last Friday I received the official phone call letting us know that Nicolas has the full Trisomy 18 with the distinct chromosome.  On the happier side of things, it means that Bryan and I did not pass this on to him nor did I possibly pass it on to Noelle and Jena. 
I have requested a cardiac consultation with a doctor with The Children's Heart Clinic which is associated with the Minneapolis Children's Hospital.  We have been told that we need to get a better understanding of Nicolas' heart issues. 
Lots of waiting....
 
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